April 3rd, 2017

It has been quite the first week home, our family is slowly adjusting to Arlyn and her needs the best we can. It has been overwhelming for everyone in their own way. mommy and daddy have been supporting each other so each of us can get some uninterrupted sleep and although we had a few hiccups this week overall Arlyn looks good and is doing exactly what she should, eating, sleeping and growing. We had our first visit with the primary care physician this past week and Arlyn gained weight although not as much as she was gaining int he hospital but by wednesday evening we found a medication error on her med sheet where she was getting double the dose of Lasix but shouldn't have been. Mommy called cardiology at 10 o'clock at night and talked to Carol Buzzard on the phone and she felt if she looked ok it was ok to wait and see how it went. The next twenty four hours she had less wet diapers but has since has done ok. Then miss Arlyn pulled her NG tube out and mommy had to put it back in she does ok with it although it was uncomfortable initially.

Arlyn is a good sleeper, so good she still forgets to get up to eat. Prayers appreciated for her continued bottle feeding to be increased, we have hit a plateau with her eating and she usually only bottle feeds 25-35ml at times she has a hard time with even that and will need the rest by NG. I really hope that Arlyn will not need a G tube but honestly it is all up to her and what she is capable of.

The boys all got to enjoy Arlyn this past weekend. The little boys got to hold her and give her kisses for the first time. Luke was funny constantly running around and saying "Im going to pet him, she's my friend" Christians huge heart was apparent for his sister and he constantly was my helper though out the day and always wanted to be around Arlyn. The bigger boys also had a good weekend with the baby and together we tried to maintain the chaos of our household and added a little crying baby that demanded moms attention. Overall a good start to home together.

Really hope for another good week ahead. Our first follow up with Cardiology is Tuesday the 4th, we have visiting nurse coming wednesday for weight check and early intervention is also coming. Kolby has a meeting at Boces on Wednesday afternoon for projection of his 10th grade year. Busy week and from here forward I will try to update the Blog about once a week for all those readers out there who want to know what is happening to baby Arlyn and our family. Love you all.