May 10th 2017

It has been a long week or so. Last Monday we had a visit to Gastroenterology and Arlyn was recommend to start Biogia a probiotic to help with digestion and to start her weaning from Mylicon drops. Arlyn has not had her NG tube in a while and has consistent weight gain so the determination was made to clear her from GI and if we need them we will call as needed. On Tuesday we were at Cardiology and had great news that her right Atria no longer had a visible clot on her ECHO so we were able to stop the Lovenox shots. We also discussed stopping Lasix and this week has gone pretty well without the lasix but this morning she was coughing so violently she started vomiting and sounded more course in her right anterior lung field so I called Cardiology and Arlyn will be going back on lasix until friday and we will see how she does. Last Wednesday Arlyn weight was 8 lbs 12 oz and this week she is 9 lbs 2 oz so she gained 6oz which is wonderful.

Arlyn turned over this week twice from belly to back, She is smiling and cooing all day long, Arlyn is staying awake during the day and falling more consistently into a sleep routine. It is so rewarding to watch this little girl grow and thrive and she is doing just that! SO proud of her!!

I officially have 1 week until I head back to work and am looking forward to some time to just focus on my nursing and leaving it at the hospital to be able to come home to my family. We have a few hiccups in the road at home with our water pump in the basement dying and water system not working well but we pray that we get to a spot where our water is working consistently. (the downfall of living in the country)

Thank you for everyones patients in my blogging. We have had a hard time with internet so I am hopeful that we can stay on a weekly schedule. Thank you for all of your continued support and prayers.

May 1st, 2017

So this week has gone quite smoothly and Arlyn is quite her own little person, we were able to make a few visits to different places like Scott and my bowling banquet (Arlyn attended), visiting her sister Journey and niece Genovine every Thursday and I visited my co-workers at highland in preparation to return. Arlyn has done fantastic this week and has not needed the feeding tube to be placed back in. She has a routine at home and is more awake during the day and sleeping at night. I love the little person she is, there have been moments where I really thought she was going to coo to me but has not yet. She is lifting her head strong during tummy time and makes her feeling well know with her cries. She typically has cranky time between 8 and 10pm and it is usually relieved by a combination of exhaustion and finally having a bowel movement.

Today we were able to visit gastroenterology and meet with the nurse practitioner, they were very happy with Arlyns progress and really felt like since she was doing so well there was no reason to return with a scheduled visit only is we need them. She was placed on Vitamin D since she is not tolerating her multivitamin (she pukes it every time) and they offered the idea of adding in a probiotic, so we will be trying that. Tomorrow we will be headed to our second follow up with cardiology and hopeful we may be able to reduce the lasix or get rid of it all together, we may be able to talk about a follow up ECHO to see if her throbus is gone so we can stop the Lovenox shots.

The count down is on, Mommy is returning to work on May 17th and really trying to get all of Arlyns ducks in a row before I return. Thank you so much for your continued love and prayers for this little girl, look at who she is the power of prayer is real <3

Arlyn and my grand baby Genovine

 Bathtime

 Breast milk supply

My little doll <3