February 23, 2017 1850

Today was a long and overwhelming day, there is a plan for Arlyn to have surgery to correct her aortic arch tomorrow. A group of Buffalo, Syracuse and Rochester cardiologists, x2 well known surgeons with extensive experience +30 years and the ICU intensivists all had a conference this morning and decided it would be best to have the surgery tomorrow since she is in the optimal health to move forward. She has a vein that empties into the right side of her heart that is supposed to empty into the left side and they will also be looking at. This surgery comes with quite the risk to the baby and we anticipate she will come back with 2 central lines, a new arterial line, chest tube, intubated and will likely be sedated for several days post op. They may or may not keep her chest open, this being said we really appreciate any prayers and well wishes in this very difficult time for our family.

This evening Carriann was discharged from the hospital and we moved to Ronald McDonald house in the hospital while the baby moved from NICU to cardiac PICU. She will return from surgery tomorrow and recover in PICU. The nice part about this is that the PICU is directly below Ronald McDonald house so we can be close to Arlyn.

On a brighter note Arlyn was able to latch on and suckle for a little bit, she was comfortable and fell asleep. It was nice to just enjoy snuggling with her and today that is mainly what Scott and I did enjoyed and loved on Arlyn. She was opening her eyes a little more than the day before and we enjoyed and were humbled by every second we spent with her.