February 28th 2017 (2000) 

Ms. Arlyn has had quite the day but has made exceptional progress, we have weaned the vent today and she is off all pain medication only getting Morphine as needed. She still does not like having her diaper changes and chest PT but afterwards she calms right down and falls back asleep. AS you can see from the picture above the EEG was removed this afternoon and now she has wax and goop in her hair but loves to have her little head rubbed so mommy has been working on that today. Her blood gasses have been good but has needed a few more calcium replacements. I never thought it would be so hard to watch your baby cry while on a vent and not be able to do anything to comfort her. Mommy had a moment today and had to walk away for a few minutes because of how it breaks my heart to see you like that. Daddy stayed and supported you holding you hand and rubbing your head while they finished chest PT. 

Arlyn's PICU bed with all of her pumps, chest tube, wound vac,

ventilator and other medical equipment

Baby Arlyn is so precious she is opening her eyes and smiles occasionally if you rub her face. Mommy and Daddy are exciting to see what little Arlyn has in store for us tomorrow praying for a wonderful day!