Update from last night Arlyn received her first bath with a pink foam clohexadine wash pre op. She actually was washed twice to kill the bacteria on her body but we were able to wash her the first time. She was quite awake last night and opened her eyes quite a bit. Throughout the night we continued to dry nurse her (pump completely empty and let her latch on) she enjoyed it but it was very apparent that she was hungry and frustrated that they won't let her eat.
Today is the day we woke up at 0500 and got ready to single with Arlyn before she headed off to surgery. She was switched off TPN and Lipids and replaced with D10, prostaglandins was the only other thing running before her transfer to OR. We walked her to the pre op area and meet the infamous surgeon Dr. Alfaris he is the main surgeon that will be in charge of Arlyns case. He discussed with us the potential for her to do well but the long and winding journey she will be on to get there. The hope is that today we will correct her Aortic arch and resection to make it large so her outflow is better and will no longer need the extra holes in her heart open. He will also examine the vein on the right side of her heart and decide what to do with it when he is in there. He will force the smaller left ventricle and smaller mitral valve to work harder over the next few weeks in hope that they will grow and compensate for the increased blood flow. He was very honest with us about the potential for this to not go as easily and that the board of doctors that meet on thursday were marginally split on the decision to go this route although this decision does have the potential to give her the best outcome in the long run and live a normal life. We should have another update around 11am so please pray and come back to the blog for updates. Pictures below are of our family time this morning.
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