Arlyn had an eventful day, she had her first bottle with a slow flow nipple. She had 10 ml on her first try and did really well. Her second feeding she worked with speech and did really well eating had a strong suck and swallow and from her evaluation she did not find anything concerning at this time for a formal FEES. If she started coughing or having difficulty advancing then we would do a study later on. She ate 12 ml this evening and was quite exhausted after 15 mins. Slowly but surely she will get this and I have confidence in her, practice makes perfect.
I went out to see Kolby and Calogero and had plans to take them to Geneseo to hang out and both of them really just wanted to relax at home so we watched Pete's Dragon and they showed me where they were in their video games. It was nice to see them and Mommy will be spending the night at the house tomorrow night in order to make a meeting for kolby at 0815 for CSE. I will try not to disrupt Arlyns day and stay at bedside and head out when Scott heads to work.
Continued prayers and love for Arlyns strength and dedication to feeding and Mommys patients with the special way I need to feed her. (Tipped on left side, 90 degree angle, three sips pull the bottle out to remind her to swallow and breath, repeat)
Burps
Fancy feet
I can hold my own hands
Daddy and Arlyn
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