Sunday, March 26, 2017

March 26th, 2017 1700

The past two days have been busy and exciting. Yesterday on Saturday we had quite the busy schedule  with the boys and I ended up feeding Arlyn in the morning, heading out to the house at 0930 and bringing the boys back to rochester because Christian went to a play Mary Poppins and Luke hung out with daddy and I for awhile and we took him out to lunch. Luke went with Eileen and then later on we got the kids back, we went to the hospital mid day and scott was able to sleep for a few hours. I was able to spend a little time with Arlyn then we both went back out to the house and I made dinner for all of the boys and cleaned up some long overdo deep cleaning. Daddy went to work and Luke was up late into the night with night mares we were back to Rochester this morning early on 0830ish. By the time I got to the hospital it had felt like Scott and I had run a marathon but a marathon totally worth it to keep the kids in a routine. Yesterday Arlyn had a big episode of vomit during her morning feeding and they decided to hold her feeds for an hour and then restart the feeds at goal to see if it was just a fluke. Honestly she did fine the rest of the day. The nursing staff loves Arlyn and are taking really good care of her we could not be happier.

This morning Arlyn took 25 ml for me during her first feed, I went and took a nap and nursing was able to feed her 10ml her next feed and at 1600 she ate 30ml. So slowly but surely she is making progress. Arlyn is loosing a little bit of weight but burning more calories with eating so we are just going to keep an eye on it right now. I really hope that this week is the week and we continue to make small gains so we can go home and be a complete family together. I miss Arlyn when Im home and I miss the boys when I am here. Overall continued slow successes.

 snuggles

 sleeping with my eyes open

bows for the little lady


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