Arlyn had a wonderful day today! Arlyns breathing was better and she was extubated at 1240. She struggled for the first hour and the medical team was worried about her work of breathing. The nurse was doing great chest PT and sitting her up and she was breathing fast but after about 45 min we decided she liked being sat up so much that I got to hold her for the first time in 5 days. She calmed down and she did better. They started weaning the dopamine off and by this evening it was able to be stopped. Over the next few days we hope to get the milrinone weaned off over the next couple of days we should see he evaluation by speech to see if she is strong enough and coordinated enough (so she swallows and breaths at different times) to take a bottle if not then we are looking at a nasogastric tube.
The dressing chafe was done on her chest wound vac this afternoon and I was told it looked so well they could have taken it off but likely on monday they will. Her Chest tube will likely be taken out later next week. WE are hopeful after the cardiac medication is weaned we will see the right neck arterial line removed…All good goals for the next couple of days.
Thank you to everyone for the overwhelming support for our family. Yesterday the little boys came up and ate dinner with me and daddy and tonight I was able to see the older boys for 4 hours this evening and hang out with them. It was extremely hard to see all of them leave but I am back at Arlyns bedside and I think all 4 boys realize how important that is. keep the prayers coming and heres to another successful day!
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