What an amazing day we had! There were a few unexpected things happen but hopefully we will sail into tomorrow with no issues. After the ECHO the nurse practitioner came to see us because they found a blood clot in her superior vena cava so she will be started on lovenox twice a day for 3 months and eventually have an ultrasound to clear her. Although they found a blood clot the structure and function of Arlyns heart is working beautifully how wonderful that the surgery has proven to work. She was weaned successfully to 2 L Nasal canal and did great today with her chest PT and prone positioning. She actually loves her belly time. She successfully has a dobhoff and started breast milk feeds at 2ml/hour and should advance tomorrow. The plan for tomorrow is to likely get the right wrist art line removed she was weaned of milrinone this afternoon so she no longer has any cardiac drugs on board. She also had her Right atrial line taken out and looks so much better without all the extra equipment. Daddy and Mommy got to snuggle with Arlyn for another hour this afternoon and she just absolutely loved the snuggle time.
This evening we spend dinner time with the kids and Scotts mom grammy Tammy. She took the kids to a hotel for the evening before she heads back to KY tomorrow. It has been nice to have Scotts mom here to help us through the last week. Christian and Luke had fun with us tonight and were really excited to have their first sleep over with grammy. The little boys watched a video of Arlyn crying and got to see pictures tonight of their little sister. Overall a really nice day! I am back by Arlyns side for a few more hours until I head to bed, please keep the prayer chain going and the amazing strides that my little bean sprout has made will continue.
Mommy and Daddy snuggle time
Ms. Arlyn with her new feeding tube
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