Today has been one of the calmer days and not a lot of real changes with Arlyn. I think the point to be driven home by today is she needs to grown and she needs more time on the Cpap. One of the hardest things to not be able to push her to hard so she doesn't go backward. They have made many changes to her diuretics and metabolic repletion over that last two days so today is a rest day. She continues to tolerate her nutrition and we just need her to grow. She lost a bit of weight last night but they think this is more reflective of fluid loss. He chest dressing was changed again this morning and it looks better and better every day. Her chest tube drainage was down to 18 ml which was the first time it met criteria to pull it although they decided to keep it in because she has trended up and down and would hate to have to put the chest tube back after taking it out.
Mommy has been feeling many symptoms of he Multiple Sclerosis gradually coming back (which is expected) Today was a more difficult day and even though I had a good night sleep I have had extreme fatigue today, so I wanted to apologize to everyone who has been following the blog because I realize that sometimes the later it gets the more worried you get. Arlyn is really doing great, the attending came in and reiterated that honestly Arlyn kinda tricked us because she has had such a great outcome and recovery right after surgery now that she is slowing down a bit on daily progress the overall picture is still to be expected and all a positive in her recovery. Please keep Arlyn in you prayers and pray for our family that we will all be able to be under the same roof with all the kids soon, we miss them.
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